Jocelyn Bessette Gorlin

Assistant Professor

651-690-6585

jbgorlin@stkate.edu

Jocelyn is an assistant professor in the School of Nursing. She has been a pediatric nurse practitioner in hematology (bleeding disorders) for over 25 years, first at Boston Children’s Hospital and at the Children’s Hospitals and Clinics of Minnesota (CHMC). She was one of the first nurse practitioners at Boston Children’s Hospital and was on the forefront of the pediatric AIDS epidemic in the 1980s, caring for children with hemophilia and AIDS.

Her research interests involve understanding the lives of families who are raising a child with severe chronic illness. She has also coordinated National Public Radio StoryCorps® Legacy at CHMC, where she led a team interviewing families of children who have hemophilia and sickle cell disease. She hopes to continue qualitative research and inquiry to inspire students at St. Kate's to love nursing research as much as she does!

She is the mother of three daughters, who are all reflective women, and a big rescue retriever named Jesse. With her husband, she has been involved in medical outreach work in several countries. He has helped to establish blood banks in developing countries and together they have educated healthcare providers about bleeding disorders.

In her spare time, she loves oil painting and long distance cross-country skiing. Her family has participated in the annual Minneapolis ski Loppet race every February since it began!

Ph.D., Nursing
University of Minnesota, Minneapolis, MN
Ph.D. thesis: Severe childhood autism: The family lived experience

  • Pre-doctoral fellowship through the University of Minnesota School of Nursing Center for Children with Special Heath Care Needs, funded by the Maternal Child Health Bureau (MCHB)
  • 2014-2015- LEND Fellow: Leadership Education in Neurodevelopmental and Related Disorders, also funded by the MCHB.

Master of Science, Nursing: Pediatric Nurse Practitioner
Yale University, New Haven, CT
Master’s Thesis: Experiencing childhood cancer: A sibling’s perspective
Graduation with Honors

Bachelor of Science, Nursing
Villanova University, Villanova, PA

Daisy Faculty Award Recipient 2018, Saint Catherine University: Teaching award given by students to one faculty member each year.

Mpls/St Paul Magazine: Outstanding Nurse Educator 2018

LEND Fellowship: Leadership Education in Neurodevelopmental Disorders, University of Minnesota: Funded by the Department of Maternal Child Health, 2014–2015

Amy Wenger Fellowship in Pediatrics, University of Minnesota School of Nursing, 2013–2014

Theresa V James Fellowship (2) and Zenkovich Nursing Fellowship, University of Minnesota School of Nursing, 2012–2013

Villanova University: College of Nursing Medallion for Excellence in Clinical Practice. The College of Nursing's highest award, 2010

Nursing Excellence Award, National Hemophilia Foundation, 2009–2010

Twinning Award: World Federation of Haemophilia. Awarded to the hemophilia team at CHMC for our work in Yerevan, Armenia, 2005

Spirit Award: Outstanding employee recognition program. The Boston Children’s Hospital. Boston, Massachusetts, 1994

Nursing Excellence Award, National Hemophilia Foundation, 1992

Nursing Research Award, American Cancer Society, 1984

Pediatric Nurse Practitioner, The Children’s Hospital and Clinics of Minnesota: Department of Hematology and Thrombosis, 2001–2016

Pediatric Nurse Practitioner/ Hemophilia Nurse Coordinator, The Children’s Hospital Boston, 1984–1994

Staff Nurse Pediatrics, Yale New Haven Hospital, 1980–1984

Related Professional Experience

Ethics Advisory Committee, the National Hemophilia Foundation. One of six elected and a founding member, 2011–2014

Nursing Research Coordinator, Nursing Working Group of the National Hemophilia Foundation, 2008–2014

National Hemophilia Foundation Nursing Working Group: 1 of 7 elected members to regionally provide representation in the National Hemophilia Foundation, 2006–2013

World Federation of Hemophilia Nursing Working Group: One of two elected members from the United States to represent the US in the World Federation of Hemophilia, 1986–1994

Journals

Gorlin, J. B., Peden McAlpine, C., Garwick, A., Wieling, E. (2016) Severe childhood autism: The family lived experience. Journal of Pediatric Nursing, 31(6), 580-597.

Gorlin, J. B., Hooke, MC, Leonard, N. (2011), “Use of Emergency Medical identification (EMI) in the pediatric hemophilia population: A national study” Haemophilia, Mar; 17, 215–222.

D’Angelo, E., Woolf, A., Bessette, J., Rappaport, L., Cibrowski, J. (1992) Correlates of medical compliance among hemophiliac boys. Journal of Clinical Psychology, 48:672-680.

Woolf, A., Rappaport, L., Reardon, P., Cibrowski, J., D’Angelo, E., Bessette, J. (1989) School Function severity in boys with hemophilia. Journal of Developmental and Behavioral Pediatrics. 10:81-85.

Woolf, A., Bessette, J., D’Angelo, E., Rapport, L. (1988) Disability and its relationship to disease severity, family coping, and locus of control in boys with hemophilia. American Journal of Diseases of Children, 142.

Books

Gorlin, J. B. (2019). How ASD influences the extended family and society. In B. Turns, J. Ramisch, & J. Whiting (Eds.) Systemically Treating Autism: A Clinician’s Guide for Empowering Families. London and New York: Routledge Press.